A Different Cadence
You start already tired, as my wife puts it. You have already lost sleep and struggled with anxiety before ever arriving at the hospital. Exhaustion compounds downward from this depleted outset. Crisis-born adrenaline wires you briefly, while borrowing heavily on energy reserves, for which you must soon pay. The shear pressure of decisions, grappling with consequences, and the demands to stay somehow calm – these accruals run all accounts into the red. Long hours of silence chew down fingernails, but they are ever punctuated by medical interruptions, cheering visits from friends, phone calls from concerned family, and sobering consultations from the doctors. The brain must learn a new language: that of meningitis, of bacterial strains, of antibiotic treatments, of dosing intervals, and of prognoses. Night brings the red eyes of unsleep, equipment alarms, and nursing break-ins. By 36 hours into the ordeal, reserves are fully spent. You realize that you haven’t changed clothes or showered.
But people adapt. As those who have known life at the ICU will attest, we find a way. We find a new cadence when the world changes. We normalize to the absurd. [Read more…]
Night had fallen while we had been in the windowless ER, somewhere in the belly of the medical behemoth. From there, they transferred us to the intensive care unit.
Paisley was only twelve days old, and no bigger than two upturned palms. She had that scent that belongs only to infants. Pink skin, with tiny newborn speckles on the bridge of her nose.
Paisley arrived in late January, during that time of year when the Texas air feels most out of character. She completed our quartet of children, a collated symmetry of boy, girl, boy, and girl. Being indifferent to sports but fond of cultural idiom, I dubbed her, “the final four.” She did seem to complete us as a family. But owing to events that transpired not long after her birth, she came to occupy a special place in our hearts and memories.
The near brush of death leaves upon us an indelible mark. So much more the case, when the noose of jeopardy closes upon a child. Our daughter Paisley hazarded that scaffold just twelve days after being born. This was three and a half years ago.
Every great scientific truth goes through three phases: first, people deny it. Second, they say it conflicts with the Bible. Third, they say they’ve known it all along.

God, but there is a lot of noise out there.




